Are you age 14 - 24 and have NF1 or are you a parent of someone this age with NF1? Would you be willing to talk to a researcher?
Adolescents' Experiences of Neurofibromatosis Type 1
Would you be willing to talk to a researcher about your experiences of having NF1
or of being the parent of someone with NF1?
We are researching young people’s experience of living with Neurofibromatosis type 1 (NF1);
it is expected that this work will be used to help develop support for young people with NF1 in the future.
We would like to speak to people (and the parents of people) aged 14-24 who have NF1. Allinterviews will be anonymous.
To take part in this research or to receive further information please
call Jenny on 07500 121137
Centre for Appearance Research, University of the West of England, Coldharbour Lane, Bristol