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latest news
2010/09/02
Are you age 14 - 21 and have NF1 or are you a parent of someone this age with NF1? Would you be willing to talk to a researcher?
2010/05/14
Lucas gives a wonderful speech about his personal experiences at the Changing Faces reception.
2010/03/01
Hot on heels of poster campaign is a children’s documentary!
2010/01/08
New CBBC documentary and poster campaign: what are your reactions?
2009/11/17
Young People Tackling Bullying
2009/11/17
Young People's Council tackling bullying
2009/11/02
One thing for others to know about disfigurement
2009/08/25
Interview With Michael: University Life
2009/07/03
Yaay! -Tom's Blog 1
2009/06/26
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"If kids keep on at me like that I always say to them, 'Do you know what you..."
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"I have found that the birthmark on my face has been really great at intervi..."
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"Moving away from home definitely puts you out of your comfort zone. Fresher..."
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"If i do mention it in passing they always say, oh i forget you have a birth..."
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"I was on holiday in America and a little girl came up to my in the pool and..."
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